Friday, July 29, 2022

Another Face of Grief

 


Having a lovely meat pie in Placerville

I am writing this blog post to explain why I posted my alarming note on Facebook a few days ago.  I’ve since removed it.  But I realize many of my friends and family were alarmed, and I would like to publicly apologize for any distress it caused.  I would also like to express my sincere appreciation and love for all those who reached out in support and concern.

It’s been a very challenging year for me, and for many close to me.  A year of transitions both planned, and unforeseen.  I have mostly recovered form the trauma of my daughter’s suicide 5 months ago.  Well, at least I have reconciled myself with it.  But, a few days ago, I really lost it, once more. 

Our mother has been suffering increasingly from dementia for a few years.  It was brought on by several small strokes.  In the past month it became glaringly apparent she could no longer live in her place.  My sister lives next door, but the level of supervision became such that she and I had to split our time to make sure Mom was not left alone.  After much searching my sister and I agreed on a memory care facility for Mom to move to.  Our mother was likely the first woman in LA Harbor to earn a USCG 100 ton Ocean Operators license.  She owned and operated the vessel: Neptune II.  Over the course of 30+ years she scattered thousands of human cremains at sea off San Pedro.  She was also an avid hiker, going out nearly every Wednesday with a local hiking club.  She’s covered more miles and trails in the local mountains that I ever will.  She managed the family finances ever since marrying my father in ‘50’s.  I tell you this because it illustrates how independent and in control she has always been.  So, to watch her slowly transition, from a well known and loved local entrepreneur, to a state approaching childhood has been difficult, well, heartbreaking. 

Last week I drove Mom up to Auburn, CA to visit her sister and to look at a property.  She has had it in her mind lately that she was going to purchase the old Wolf Post Office owned by a childhood friend.  She recalls visiting her friend and his mother at some point, long after leaving Wolf the day after high school graduation.  In her mind that visit was 2 or 3 years ago.  I am pretty sure it was more than 30 years, possibly even 50.  Such is one of the manifestations of dementia, time becomes largely meaningless.  I had done some research and realized the old Post Office building had been moved many years ago.  My sister phoned our uncle, and learned Mon’s old friend had passed away about 8 months ago.  I knew though, the only way to break Mom of this fantasy, was to take her there and show her the area.  If I didn’t, she would continue to look into packing up the house for a move that was never going to happen.  We decided that while I was up North, my sister and my girlfriend would move some of Mom’s furniture into a room at the memory care facility we had chosen.  It would then fall to me to come up with a story about why she was moving into a new place instead to returning to her house.

I decided to tell her the house needed major repairs (more true than I realized) and that we had booked her a room at a resort while the work was being accomplished.  I waited, and only told her this on the last day of our journey.  When I brought it up, she was initially fine with the idea.  Mind you I don’t know how much of it she really processed.  Also, that same day, I heard from the mortuary, telling me the final death certificates were available for my daughter.  Mom and I arrived at the “resort” and began checking in.  She was a bit confused why the room furnishings looked so familiar.  I explained that we had brought some of her furniture, needlework and photos to make her feel more at home.  She was nervous and somewhat confused, but going along with the story.  Another aspect of dementia is that the degradation of mental capacity is not even, or uniform.  People can have sudden moments of apparent lucidity.  I took her to look over the facility.  Looking at the courtyard she commented “this is a very nice hospital”.  I assured her it was not a hospital as people were not hooked up to IV’s and monitors and she acknowledged “oh, that’s right”.  After an hour and a half, I was preparing to leave.  She suddenly looked panicked and frightened.  She thought I’d be staying with her.  I hugged her, kissed her forehead, and she asked if I’d be back the next day, I assured her I would. 

As I walked through the doors my eyes were already filled with tears.  When I got to the car, I completely broke down, sobbing uncontrollably.  I felt that I had just lied to get my mother to go into this place, that she knew I was lying, but was going along with it.  And worst, that she was terrified and I had abandoned her.  I couldn’t just sit there in the parking lot sobbing, so drove a few miles to a trailhead where I was off the road.  I spent the next two hours unconsolably sobbing and crying in anguish.  It was just too much for me, the one last straw.  Though I rarely post publicly about my emotional state, I did then.  Though I didn’t want anyone to see me.  And I didn’t want anyone to try and console me.  I felt like I had to scream out in pain to everyone.  It was horrible.  After posting I shut off my phone.  An hour or so later I realized I should add to the post, as it was no doubt causing alarm.  Eventually I reached out to my sister, who had been trying repeatedly to reach me.  She and my girlfriend had been worried that I was going to harm myself.  They drove out to get me as I’d told them I could not drive.

That was the second day this year I felt grief so intense I thought would destroy me.  I am still a bit shaken.  I ate an anti-depressant yesterday to help me function. 

Placing our mother into memory care was the right thing to do.  But just because something is right, and an easy intellectual decision, does not make it an easy emotional decision.  This was one of the most difficult things I’ve done.

Again, I thank all of you who reached out.  I forget how many people genuinely care about me.  It’s been a challenging year so far.        

Friday, March 18, 2022

This Sucks More Than Anything Has Ever Sucked Before

 

Yesterday was one of the hard days.  Days are fuzzy now, dates as well.  I am never sure if a day is going to be OK or not when I get up.  Yesterday was a bad one.  It wasn’t until I went to set my watch today that I realized yesterday was the 16th.  Hannah passed away last month on the 16th.  Ouch. 

I greatly appreciate all the people who have, and continue to reach out to offer support.  But, I am not trying to answer the phone much, or respond immediately to the texts and e-mails.  I find that when I talk to people about my grief, or about Hannah’s life, it is very painful.  I end up either deeply sad or emotionally hungover.  Everyone handles such things differently.  Some folks need to be around others, for both support and distraction.  I’m a bit different.  I need quite a bit of time alone to process this terrible event.  My weekly snow hikes help to keep me centered and grounded.  They are a distraction I suppose.  Hiking in deep, steep snow requires being in the moment. 

The dreams are not as frequent as they were last month.  I can’t call them nightmares, but they are not far form that.  I dream of situations I can’t resolve.  Having to be someplace, and being unable to get there.  The irrational thoughts about my other children are still an issue.  I’ll wake late at night, close to panic, fearing one of my other children is lying dead someplace.  Knowing it isn’t true doesn’t reduce the anxiety much. 

Among all this processing, life continues unabated.  I still have taxes to file, vehicles to register, a memorial to plan.  My sister is taking our mom to the ER as I write this.  She fell in the kitchen and has a nasty knot on her forehead.  She fell in the past due to mini-strokes.  I worry that this may be another episode.  Our mom’s health has been declining for several years now: the mini-strokes, dementia, COPD.   I’ve had time to consider that I need to write a eulogy for her, while things are still OK, while I am still clear headed.  It never occurred to me I’d have to write a eulogy for dear Hannah.  I honestly don’t know if I can.  I can barely muddle through helping to plan her memorial. 

2022 is shaping up to be quite a challenging year.  But life never stops to allow you to grab a breath.  So it goes.   


Monday, February 21, 2022

My Heart Has Been Shattered





 I am still processing the death of my daughter.  She wouldn’t want me to refer to me as her daughter when she was alive, but now she won’t mind.  I have always considered the death pf a child a terrible, terrible event for a parent.  But that was an intellectual knowledge.  I never even considered what it must feel like to have my heart shattered.  That is the image in my mind, my heart broken into thousands of ragged shards.  When I think of Hannah the first image that floods my mind is her lifeless body on the floor of her room, face down, arms at her sides, cold to the touch, unmoving, unresponsive, unoccupied. 

It’s common practice to refer to the death of a 29 year old as untimely.  I can’t look at Hannah’s transition in that light.  In the past year she told me more times than I can count that she never thought she would be alive this long.  She lamented that she was way behind in figuring out how to live.  Hannah had schizoaffective disorder.  She heard voices that told her terrible things and made her life unbearable.  She was never comfortable in a physical body and often had pains and discomforts.  She only lived to help others, and because she knew she was greatly loved.  We thought the suicide attempts were at an end.  As difficult as life was for Hannah she knew that if she harmed herself, she would be harming many, many others in the process.  Sometime on the 15th, or early on the 16th, the pain was too much.

I am writing about this because I need to process it in my own mind.  I am writing about it because I feel it should be documented from my viewpoint.  This is only my view.  Everyone who knew Hannah will see things differently.  I can’t think of that.  All I can do is try to heal myself, my very broken self. 

I was told recently that I need to focus on healing myself.  This was before Hannah’s departure.  There are traumas in my distant past that have shaped me.  I was advised strongly to stop trying to save others and address my own traumas.  It was that advice that helped fuel an argument with Hannah 5 days before this terrible event.  I am now searching to forgive myself because I feels like the proximate cause of her departure.  There were other factors.  About a month ago she stopped taking her meds for 4 days in a row.  So, she was still adjusting to being back on meds.  Ultimately life was unbearable for her, just life in general.  I know if she had been saved at the last moment and awoke in a hospital bed she would not have been grateful.  I know this because she told me as much.  Now finally, after far too many years Hannah is at peace.  She is resting, healing.  But my hears still bleeds uncontrollably. 

I was told I needed to focus on myself. But I am now doing my best to be the strong one for several people.  In between bots of deep grief.  At the same time I have suspected my immediate friends and family are worried for me.  It seems I am not to be left alone.  That is how it feels at any rate.  I am humbled by all the love and concern for me.  I also know I need some time alone.  Time to write.  Time to grieve, to let the pain and loss wash over me.  I feel like I’ve been poisoned and there is no antidote.  All I can do is allow the poison to run its course.  I will live through it, but it’s not going to be pleasant. 

 

 Symptoms: Schizoaffective disorder

Symptoms include:

  • Bizarre delusions
  • Hallucinations (visual and/or auditory)
  • Thought insertion
  • Thought broadcast
  • Thought withdrawal
  • Depression
  • Mania: sudden increase in energy
  • Problems with communication
  • Odd behavior
  • Disorganized thinking
  • Inability to correctly perform routine daily activities

 

Causes

  • The exact root cause is unknown. Several factors contribute to the condition:
  • Genetic predisposition: an increased tendency to develop the condition may be inherited
  • Brain chemistry changes
  • The risk factors include:
  • Having family history of close relative with schizoaffective disorder, schizophrenia or bipolar disorder
  • Psychoactive drugs are linked to the development of schizoaffective disorder
  • Stressful events such as death, divorce can trigger the symptoms

 

Prevention

There is no assured way to prevent schizoaffective disorder

  • Control stressful events
  • Boost self-esteem
  • Get early treatment to prevent relapses and need for hospitalization
  • avoid consumption of psychotropic substances

 

Complications

Uncontrolled for prolonged period may lead to complications such as:

  • Increased risk of suicidal attempts
  • Social isolation
  • Anxiety disorders
  • Family and interpersonal issues
  • Developing alcohol and other substance abuse issue